Mike represents so many children and this is extremely difficult for families to handle. Insurance doesn't want to pay for the help and schools are stretched so thin that it's near impossible to follow a plan consistently and with fidelity day in and day out. How about when we have better days but then that is followed with terrible days. How about if they start to demonstrate an entirely new behavior that we are not prepared for? All children and staff are affected so what is the right answer?
Many parents have struggles and although it appears as they can handle this, I must admit it's terribly difficult. Mike is like my own son in many ways and we have good and bad days. Balancing it all out is by far the most difficult challenge I have ever had. Being sleep deprived impacts so much including relationships. Our friends and families do not understand what we go through unless they live it too. Our communities do not get the challanges that we have. Also keep in mind, it's life-long! This does not go away, there is no cure!
I ask that you practice not only awareness but offer support to so many families that are raising children with a disability. Teach your children about caring and being compassionate to others. Patience and understanding is much appreciated by parents like us. We did not choose this, we did not plan for this. We are doing the best we can to give our children a fair chance in this world.